11 providers to share data on 1.1M patients for diabetes registry

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Eleven integrated health systems have combined de-identified data from their EHRs to form a private-sector diabetes registry.

The SUPREME-DM (SUrveillance, PREvention, and ManageEment of Diabetes Mellitus) DataLink includes de-identified health information from nearly 1.1 million people with diabetes in 10 states: California, Colorado, Georgia, Hawaii, Michigan, Minnesota, Oregon, Pennsylvania, Washington and Wisconsin.

Participating health plans include six regions of Kaiser Permanente, Geisinger Health System, Group Health Cooperative, HealthPartners, Henry Ford Health System and Marshfield Clinic.

The DataLink contains test results, prescription records, hospital and clinic visit information and vital statistics. According to a study published in the Centers for Disease Control and Prevention's (CDC) "Preventing Chronic Disease," the SUPREME-DM DataLink provides a resource to conduct population-based diabetes research and clinical trials, allowing users to compare prevention and treatment strategies.

“The database contains an ethnically and geographically diverse population of women and men who mirror the general population with diabetes,” noted John F. Steiner, MD, MPH, senior director with the Kaiser Permanente Institute for Health Research in Denver, in a prepared statement. 

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